My name is Joe Hemsley-Rudd and I will be cycling from London to Paris on the 23 - 27 September 2020 to raise money for the Craniofacial Team for Great Ormond Street Hospital Children’s Charity because of the amazing work they do for sick children.
Ely Cathedral to Great Ormond Street Hospital, 16 August 2020
As well as the planned charity bike ride scheduled this September, I shall also be undertaking a bike ride from Ely Cathedral to Great Ormond Street Hospital on 16 August 2020. All money raised from this will be added to my fundraising target of £15,000. At present we are just over £2,000 from reaching this total, which is great news! Many thanks to all whose donated.
In 2018 our son Louis was diagnosed was a condition called Craniosynostosis, which one or more of the fibrous sutures in his skull prematurely fused by turning into bone, thereby changing the growth pattern of the skull.
Because the skull could not expand perpendicular to the fused suture, it compensated by growing more in the direction parallel to the closed sutures. In some cases, where the skull size does not provide enough space for the growing brain, craniosynostosis results in increased intracranial pressure. We we’re fortunate that Louis did not suffer from raised pressure, however in children that do suffer it can cause issues with speech and language and development delays.
So, in May 2019, The Craniofacial Team at Great Ormond Street Hospital led by Mr Jeelani and Professor Dunnaway performed a full 360 reconstruction of Louis skull. The operation went well and Louis will continue to be monitored for raised pressure throughout his childhood years.
The period of time between diagnosis and recovery from the operation was really difficult for our family. However we were well supported by those closest to us and the fantastic team at GOSH.
1. Fundraise for Great Ormond Street Hospital and in particular the Craniofacial Team
2. Raise awareness about Craniosynostosis
as it affects 1 in 2000 births.
So if you can help me in my challenge to cycle 300 miles from London to Paris in 4 days in September 2020, I would be extremely grateful. Any donations would be greatly appreciated however big or small as it would massively help.
We fundraise to enhance Great Ormond Street Hospital’s ability to transform the health and wellbeing of children and young people. Donations help to fund advanced medical equipment, child and family support services, pioneering research and rebuilding and refurbishment.
Charity Registration No. 1160024
Find out more about charity fundraising